I (Ranae Wulff) didn’t know I had a metabolic bone disease and a condition called Hypercalciuria which caused extreme osteoporosis. Since then I have had 69 surgeries in 11 years.
At the tender age of 45 Sept 9th, 1998 my world changed. I was practicing my t stops while rollerblading. I was going slow, fell on a pebble and ended up with a severe compound spiral fracture to my femur and throcanter. At the same time I injured my ulna nerve in my elbow and required surgery. Nine months later to the day I broke my plate in my femur in half and re broke my femur.
At that time I was losing weight and found I had breast cancer, but had too little bone to have chemotherapy so a lumpectomy, radiation and medication was my adjunct treatment. I’ve also had 5 ulna nerve surgeries to my hand where muscle was replaced to cover that area from scarring down. Since then they found a tumor in my salivary gland, I have had 3 fusions to my C 4,5, 6, 2 anterior and 1 posterior and anterior. I had several surgeries to the femur I fractured and found my sciatic nerve was twisted and scarred down in my leg.
The bone where my bone was harvested to support my femur was not taken off properly and caused more problems and another surgery was required. I’ve had 9 rotator cuff surgeries to my left arm where my muscles were showing signs of cannibalization. I ended up with blood poisoning from a surgery from a piriformis muscle surgery to restore a hole left from the surgery.
Last year I had to have a total hip replacement on my left leg and ended up with a drop foot. I am still recovering and hope to recover fully in my peroneal nerve and regain strength in my ankle and foot to walk without a high gate and not break my ankle. I have Crohn’s disease, fibromyalgia and RSD (Reflex Sympathetic Dystrophy) Syndrome.
It would be too long to mention all of the surgeries but I wanted to high light a few so that those reading our website could gain an understanding that we do understand chronic pain. My husband and I have met some of the best surgeons as well as pain management doctors and physical therapy doctors to help us take control of our lives again.
Not only did I have my own problems with not having someone available to help me; my husband sustained a life altering motorcycle accident October 14, 2005. He was hit from behind on the freeway going 65 mph (the driver left the scene) and the accident left him an above the knee amputee.
My husband incurred a torn aorta, paralyzed vocal chord, broken sternum; a hip that was dislocated into his pelvis which was shattered, a stroke to his right cerebellum and his right arm was shattered. He was in a coma and on life support for two months, with feeding tubes. I brought him home with a trachea tube, a new life, and a set of new circumstances.
We later found he had a broken back, so he required a surgery to his L5-S1 and has many ongoing surgeries to his vocal chord that was paralyzed and nearly lost his right arm.
THIS IS WHO WE ARE NOW
We are a non-profit organization that provides resources, education, and volunteer support through means of grants, donations, gift advertising, fund raising and special events dedicated to the challenges of chronic pain.
MISSION
Chronic Pain Resource
and amputee Support was developed to help those in chronic pain and for
amputees to help them in their daily lives gain better insight and
support them through mind, body, emotional, spiritual, intellectual and
financial support. Unless you've lived it, it is hard for those to
understand the daily challenges of those who haven't. Our goal is to
raise the bar in helping those in chronic pain and amputees realize they
can still live a quality of life. We offer a forum for them to talk
about their challenges to each other, bring their insight as well as
bring in speakers that may help them along their way in order to live a
renewed path.